Published 2022-04-22
Keywords
- Osteogenesis Imperfecta,
- Transfer,
- Transfer tool,
- Pediatric to adult
How to Cite
Copyright (c) 2022 Marianne Légaré, Analisa Astorino, Zineb Bouaouina, Melina Phan, Yi Wei
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
Abstract
What happens once young adults and adolescents with osteogenesis imperfecta (OI) have to transfer from the pediatric to the adult healthcare system? To facilitate this process, a knowledge synthesis explored the challenges faced by OI patients during their transition and elaborated a transfer tool. This study is meant to help educate nurses into optimizing the transfer of OI patients. The following expert commentary was developed in the context of a research course and aims to summarize and comment on the findings of this study.
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References
- Isabel Carrier J, Siedlikowski M, Chougui K, Plourde S-A, Mercier C, Thevasagayam G, et al. A Best Practice Initiative to Optimize Transfer of Young Adults With Osteogenesis Imperfecta From Child to Adult Healthcare Services. Clinical Nurse Specialist. 2018;32(6):323-35.
- Gray WN, Schaefer MR, Resmini-Rawlinson A, Wagoner ST. Barriers to Transition From Pediatric to Adult Care: A Systematic Review. Journal of Pediatric Psychology. 2017;43(5):488-502.
- Michalovic A, Anderson C, Thorstad K, Rauch F, Tsimicalis A. Exploring the Perceived Self-management Needs of Young Adults With Osteogenesis Imperfecta. Clinical Nurse Specialist. 2020;34(3):99-106.